A Global Search for the Other 150 Children with Progeria

Author: Progeria Research Foundation

In this series you will hear from people whose lives have been touched by the rare, rapid-aging disease, Progeria. Those featured include representatives from The Progeria Research Foundation (PRF) and family members of children with Progeria. In October 2009, PRF launched a global campaign to find the undiagnosed children with Progeria to ensure that all children with Progeria have access to the vital treatments and support they need  -- experts predict that another 150 unidentified children with Progeria live throughout the world. 

 

Episodes

Progeria 101: Why the Other 150?

Executive Director of PRF, Audrey Gordon explains Progeria and the "Find the Other 150" campaign.

Listen Now: Running time: 7:30 | Download MP3

The Science of Progeria

Leslie Gordon, PRF Medical Director, describes the science behind Progeria.

Listen Now: Running time: 12:34 | Download MP3

Progeria: A Family's Experience

Tina Pickard speaks about her son, Zach, and their experience with Progeria.

Listen Now: Running time: 6:30 | Download MP3

Progeria: A Family's Experience

Stephanie Howard speaks about her son, Cam, and their experience with Progeria.

Listen Now: Running time: 7:12 | Download MP3